Try to give medicines at about the same times each day, to help you remember.

If you are not sure a medicine is working, contact your doctor but continue to give the medicine as usual in the meantime. Do not give extra doses, as you may do harm.

Only give this medicine to your child. Never give it to anyone else, even if their condition appears to be the same, as this could do harm.

Make sure that you always have enough medicine. Order a new prescription at least 2 weeks before you will run out.

Make sure that the medicines you have at home have not reached the ‘best before’ or ‘use by’ date on the packaging. Give old medicines to your pharmacist to dispose of.

Where should I keep this medicine?

Keep the medicine in a cupboard, away from heat and direct sunlight.

It does not need to be kept in the fridge.

Make sure that children cannot see or reach the medicine.

Keep the medicine in the container it came in.

Who to contact for more information?

Your child’s doctor, pharmacist or nurse will be able to give you more information about ubidecarenone and about other medicines used to treat mitochondrial disease.

When should I give ubidecarenone

Ubidecarenone can be given once or twice each day. Try to give it at about the same time(s) each day.

If it is to be given once each day, this can be in the morning or the evening.

If it is to be given twice each day, this should be once in the morning and once in the evening. Ideally, these times are 10–12 hours apart, for example some time between 7 and 8 am, and between 7 and 8 pm.

Give medicine at about the same times each day so that this becomes part of your child’s daily routine, which will help you remember.

Why is it important for my child to take ubidecarenone?

In some mitochondrial diseases, the cells do not have enough co-enzyme Q10 (also known as ubiquinone), which the mitochondria in cells need to work properly to make energy. Giving your child ubidecarenone does not cure the mitochondrial disease but it may help reduce the symptoms.

It is important that your child takes this medicine regularly to replace the ubiquinone that your child’s body does not produce naturally.